Hi friends!
Thank you for visiting Erin's website!
This is Erin.
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Erin has a rare disease called Fibrodysplasia Ossificans Progressiva, or "FOP."
It also goes by "Stone Man Syndrome," because that's what it does.
It turns the body to stone.
As you can see above, bones have already fused in her neck, back, arm and elbow. This picture is from September 2012.
Erin is now losing mobility in her right leg and hip.
ERIN IS ONLY 7 YEARS OLD
Team, Erin and her family need our help! But they would never ask for help themselves. So I'm asking for them!
Erin has a basic wheelchair already. With progressively reducing mobility, her family needs to retrofit it so it works for her unique needs now and will continue to work as her condition progresses.
As you can imagine, there are some other things they need to be able to stay in their current house and make life for Erin as normal as possible. Did I mention they live in a tri-level house? That's a lot of steps.
I know you want to learn more about Erin, who she is, and what you can do to help. Please check out the rest of our website, the fabulous auction, and our donation page!
And again, we thank you for visiting!
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