Erin has a rare disease called Fibrodysplasia Ossificans Progressiva, or "FOP."
It also goes by "Stone Man Syndrome," because that's what it does.
It turns the body to stone.
As you can see above, bones have already fused in her neck, shoulders, back, arm, elbow and ribs.
ERIN IS ONLY 8 YEARS OLD
Team, Erin and her family need our help! But they would never ask for help themselves. So I'm asking for them!
Erin is on three different medications to ward off what fusions she can, help with the pain of constantly growing bone, and ease the tummy trouble FOP patients face. She recently had a dangerous dental procedure requiring a team of experts, and more FOP expenses are on the way.
There are many things they need to stay in their current house and make life for Erin as normal as possible. Did I mention they live in a tri-level? That's a lot of stairs.
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