Erin has a rare disease called Fibrodysplasia Ossificans Progressiva, or "FOP."
It also goes by "Stone Man Syndrome," because that's what it does.
It turns the body to stone.
As you can see above, bones have already fused in her neck, shoulders, back, arm and elbow. This picture is from September 2012.
ERIN IS ONLY 8 YEARS OLD
Team, Erin and her family need our help! But they would never ask for help themselves. So I'm asking for them!
Erin is on three different medications to ward off what fusions she can, help with the pain of constantly growing bone, and ease the tummy trouble FOP patients face. This past month she had a dangerous dental procedure requiring a team of experts, and more FOP-related expenses are on the way.
There are many things they need to stay in their current house and make life for Erin as normal as possible. Did I mention they live in a tri-level? That's a lot of stairs.
I know you want to learn more about Erin, who she is, and what you can do to help. Please check out the rest of our website, the fabulous auction, and our donation page!
***CHECK BACK 10-30-13, A FACEBOOK PAGE FOR FOLLOWING US WILL BE POSTED!!!
And again, we thank you for visiting!